Tracy Kramer Seckler was living a charmed life in the Berkshires with her family when, in 2004, a poisonous dart fell from the clear blue sky. Her middle son Charley was diagnosed with Duchenne muscular dystrophy, the #1 genetic killer of children worldwide. Just a few months after the diagnosis, Tracy and her husband Dr. Benjamin Seckler co-founded the nonprofit organization Charley’s Fund to help develop treatments for the dread disease. Charley’s Fund has been instrumental in advancing new therapies into clinical trials, and remains dedicated to saving Charley and many thousands of children like him all over the world.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at http://ted.com/tedx