No matter how black a cloud may loom overhead, you can still live a life full of humor, love and delight. Take it from Charley. While Tracy focuses intently on changing the future for Duchenne Muscular Dystrophy, the #1 genetic killer of children worldwide, via Charley's Fund, the nonprofit organization she co-founded to help develop treatments for the dreaded disease her son has, she noticed something interesting about Charley: he was living intently in the present. In this talk, she will share what she has learned from observing her 15-year old son. Wisdom from Charley.
Tracy Kramer Seckler was living a charmed life in the Berkshires with her family when, in 2004, a poisonous dart fell from the clear blue sky. Her middle son Charley was diagnosed with Duchenne muscular dystrophy, the #1 genetic killer of children worldwide. Just a few months after the diagnosis, Tracy and her husband Dr. Benjamin Seckler co-founded the nonprofit organization Charley’s Fund to help develop treatments for the dread disease. Charley’s Fund has been instrumental in advancing new therapies into clinical trials, and remains dedicated to saving Charley and many thousands of children like him all over the world.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at http://ted.com/tedx